I know youâ€™ve been doing your research about Scottish neurologists, so hopefully you have found one who is at least sympathetic and informed about diet, vitamin D etc. Wouldnâ€™t it be great if the neurologist backed up all the things that youâ€™ve been telling your daughter about OMS?
Letâ€™s assume that this ideal scenario does not happen. I guess what you donâ€™t want is the typical â€œwait and seeâ€ advice. Worse still would be â€œdonâ€™t worry about it, you probably wonâ€™t get MSâ€ and worse still would be â€œdonâ€™t change your diet, thereâ€™s no pointâ€.
Depending on the severity of the unhelpful advice, I would probe further about the conversion of optic neuritis to MS and the risk factors for having another MS-type episode. The problem is, we know the answers to these questions, or at least we think we do, but Iâ€™m not sure the neurologist will agree.
I was given the â€œdonâ€™t worry, you probably wonâ€™t get MSâ€ piece of advice. This was reassuring at the time, but ultimately unhelpful. In retrospect it would have been better if I had been told "you're unlikely to get MS if you adopt these very important lifestyle changes". Personally I feel everyone with a demyelinating disease should try and minimise their risk factors.
Needless to say, I hope â€œdonâ€™t worry, you probably wonâ€™t get MSâ€ turns out to be 100% accurate in your daughterâ€™s case.