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It is a couple of years at least since I last posted about this. My hair loss has not improved, and I've lost all of it above my forehead and a lot at the sides and top. It has become a big embarrassment and I've been to see a hairdresser about a hairpiece to cover those areas. If I was male, I think I'd be more accepting - in the great scheme of things, it doesn't seem such an issue. But somehow it is for a female.

My hair started dropping out quickly within weeks of starting OMS, nearly five years ago. I have been told by a specialist that it must have been caused by the shock of change of diet (I stopped meat, dairy and sat fat overnight, having decided that if I 'cheated' even once, I would slide back into old habits). I don't take any MS drugs, and never have done.

There's no way I'd go back; I can't emphasis that enough. Due to OMS I have not had any relapses, and am no worse than I was five years ago. I really enjoy the OMS diet. The hair loss is the one negative. I wish now that I'd gradually, rather than suddenly, cut down on all the above - but far too late to change that now.

Has anyone else experienced hair loss that did not improve over the years?

Thanks for reading this.
Diagnosed 2013.
Hi Sunlight

Sorry to hear you are experiencing this - it must be distressing.

I think my hair loss has increased since starting OMS, but as I have also been on Copaxone, I can't guarantee that it is entirely to do with the diet. I am fortunate in that I am blessed with thick hair, so I only really notice the loss in that the amount I 'moult' in the shower seems to have increased.

Diet-wise, having done a quick Google, it would seem that lack of protein could contribute to hair loss. Perhaps see if your diet includes enough? Are you a fish eater, or is your diet strictly vegan?

Sorry not to be able to offer more help.


Rachel
Thanks for your reply, Rachel.

Yes, I too had very thick hair, and it's still thick in places. Which makes the balding places stand out even more!

Thank you for your suggestion about protein. I am a fish-eater, and also eat plenty of beans and nuts. But I might try upping the amount even more. I've had extensive blood tests to see what's missing (zinc was one theory, as was iron and a few other things), but everything came back normal.

I assume no-one else has had this problem, as there are not more replies. It appeared from posts some years ago that people found any hair loss was temporary, and it grew back again. It must be the same for people now. Oh well, back I go to clearing the blocked shower once a month...
Diagnosed 2013.
First of all, sorry to hear that you're experiencing this, Sunlight.
The last time I suffered hair loss it turned out I was anaemic, but you've already said that your iron is normal.
Take a look at this:
http://www.nhs.uk/Conditions/Hair-loss/ ... auses.aspx
Interesting that it can be caused by problem with immune system. I've never heard of it as a problem with MS but reading the info does make it seem possible as it can be an autoimmune thing which MS is also. Also it mentions stress. Do you think that could be a factor?
I must not fear. Fear is the mind-killer ― Frank Herbert, Dune
2014 - diagnosed
Thank you, Irulan. Because of your link, I went to the nhs website and from there found a link to Alopecia UK, which I found has a support group not far from me. So I shall go to that, and double thank you to you!

I've been less stressed in the last few years than I ever have been. My hair loss started very suddenly and dramatically some weeks after I started OMS. Last year I saw a trichologist who arranged all the blood tests, and she's the one who suggested it must be the body's shock reaction to suddenly changing my diet. Cutting out fat, perhaps? Or dairy? She was totally flummoxed by me, and that was her only suggestion.

So it's not MS itself, but the diet I've chosen. And which I can't change, because stopping it might mean worse MS symptoms, which is worse than alopecia!
Diagnosed 2013.
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