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Hello, i'm undiagnosed but began with aggressive cognitive issues + tingling feet in early 2014. Things progressed v slowly, brain scan in Nov 16 and negative lumbar puncture.

In early April 2017 I took a very potent, 30billion CFU 30 strain probiotic, for 2 weeks for ongoing digestive problems since the previous November 16. It was my choice, at this stage I did not think I had MS, and thought at worst it may have some mild side effect and would help my gut issues.

2 weeks after beginning the probiotic I began feeling very very depressed for a period of 10 minutes which became more constant over weeks. I stopped the probiotic immediately upon feeling this depression for the first time but symptoms continued building. Then in Mid-May 2017 I awoke in the night with both hands clawed and tight calves. I realised at this point that this could well have been MS (I would assume PPMS as since initial onset my symptoms never ceased and progressed) and have accelerated it enormously with use of the probiotic.

Symptoms continue to build quickly since mid-may 2017:

-calf muscle wasting
-intermittent neuropathic pain
-increased hair loss
-blurred vision intermittently / worsened distance vision overall
-walking getting slower
-intermittent tinnitus
-cracking of finger joints
-greatly worsened cognition and now a constant sense of low-mood
-balance issues

Things are progressing very very quickly and my cognitive function has decreased massively. Lost all STM and Immediate memory.

Is there any way of naturally halting this / reducing inflammation? All advice very welcomed
This sounds really frightening and horrible. You poor thing. I will give your situation some thought and see if I can come up with some sensible advice.

In the meantime, are you following the OMS diet & supplement regime? I am not much use at the meditation myself but other forum members are powerful advocates of how helpful meditation can be. Are you able to meditate?

Turmeric and ginger are very helpful anti-inflammatories.. I drink both as herbal teas during the day..

I will post again.

Healing thoughts,

Jette
The Gut Microbiome is KEY to optimal health.
The OMS site & forum are brilliant! Thanks, everyone! :D
Thanks Jette,

It is certainly very frightening. I feel a very different person from 4 months ago. The loss of cognition is the worst, I can feel constant migraines in my head and inflammation. I can't believe 4 months ago I was doing ok and a probiotic has stirred all this up.

I wasn't following OMS diet specifically or supplements before this, but I was on a gluten/dairy free diet of my own accord to see if it helped my issues. I'm off that at the moment as feeling very alarmed and down but perhaps should get on it again. I had no idea at the time it was possibly MS. I was 'cleared' of MS after a brain MRI (although showed some non-specific lesions) and a negative lumbar puncture at the start of this year. Then I took the probiotic about a month later, then I realised that actually it could well and probably is MS after all - very atypical PPMS though: first presentation was cognitive and tingling, no change for 2 years then progressed slowly, then took the probiotic and now this.

Very much struggling with meditation. Constant migraine and lack of cognition means i cannot focus.

I won't see a consultant again until November/December but i'm flying downhill so fast I don't know what to do. I will try Ginger and Turmeric.

Thanks
Will reply in more depth later on but in the meantime you might like look up magnesium + migraine. In the course of trying to help a friend who suffers from migraines I came across a scientific paper saying that magnesium supplements should be th first port of call of all migraine sufferers. Worth a bit of Internet research time?

There are several different types of magnesium, some better absorbed and tolerated by the body than others. The one I dose family members on is 'Natural Calm' by Natural Vitality (available through Amazon). Best to build up dose slowly, as can cause gastrointestinal upset otherwise.

More later.

Jette
The Gut Microbiome is KEY to optimal health.
The OMS site & forum are brilliant! Thanks, everyone! :D
Hi

I would also like to add magnesium is good for migraines. I have a friend who suffers from bad migraines and she takes magnesium supplements. I also have suffered from bad migraines and have been taking magnesium supplements for over a year and it is only in thinking about it that I realise I have had very few migraines in that time.
I would also like to add tumeric in my opinion is very good. As you say you are feeling very down tumeric has really helped my mood. I posted about it on this forum recently. These are things that help over time and you don't realise the good they are doing until you think about it.
Hope this helps

Valley
Welcome and sorry to read of your tough time.
My migraines were related to dairy and not had one since stopping dairy.
Has anything else occurred either before or during taking the probiotics. Anything that was stressful. Or a big change in weather.
Thanks, no nothing at all.

It was literally a case of me getting on with life with cognitive impairment and tingling in various places, took the probiotic for two weeks and a whole cascade of symptoms started. Some have come and gone. It started with depression and tight calves and seemed to make its way up through my body to my brain.

All ideas for calming down the immune system welcome!
Have your vitamin d level tested and ask for the actual number when the results are back.
The gut microbiome is a complex organ (it is now indeed classed as an organ) that scientists are only just beginning to understand. We do know that it controls up to 70 or 80% of our immune system. So a dramatic change to the gut bacteria (the high dose probiotic) could perhaps have sparked off a set of underlying conditions? I don't know - I am only musing.

Given the sudden and severe onset of your symptoms I do wonder if it might not be wise for you to consult a qualified health practitioner - someone trained in functional / holistic medicine? Alternatively, if you wanted to go down the conventional medicine road, perhaps try and see a neurologist privately and consider a course of high-dose steroids. Steroids rather fly in the face of functional medicine, which considers them a last resort as they are pretty tough on the body. But they do work to dampen down inflammation.

Were you to go down the functional / holistic medicine road, I imagine a practitioner would go through your diet and advise you on cutting out anything inflammatory. And then probably address the leaky gut issue that all of us with an auto-immune disease are thought to have. And then think about strategies and supplements to help with your specific issues, including the cognitive ones.

The whole issue is linked, in other words, and I find myself a little nervous of giving you 'bitty' advice to the effect that such and such a supplement might help you. But with that disclaimer out of the way, I don't see that you can possibly come to any harm by
A) following as anti-inflammatory diet as you can. The OMS diet would be a good starting point?
B) Taking Omega 3 supplements. Omega 3 is incredibly important for brain health. Although the general advice on the OMS site is to take flaxseed oil, the vegan Omega 3 is not as readily available to our bodies as fish (or algae) oil. The body has to convert it and the process relies on quite a lot of things being just right. So in your situation I would go straight for the fish oil and have quite a lot of it. On his website, Dr David Perlmutter talks about everyone needing at least 1000mg of DHA a day, and up to 1400mg DHA daily for therapeutic purposes. (See http://www.drperlmutter.com/daily-dose-dha ). That would mean taking between 3 and 5 capsules like this one every day:
https://www.healthspan.co.uk/products/o ... a-3-1200mg
(Healthspan ship worldwide, by the way).

There are additional supplements that have been shown to help with cognitive function but perhaps I can leave them for a later post. As I mentioned above, I think there is a strong case for you getting proper professional advice before you start dosing yourself with assorted natural remedies. But I don't think it can possibly harm you to adopt an anti-inflammatory diet and to take Omega 3. As veg says, it's also a really, really good idea to get your Vitamin D level tested.

Take care of yourself,

Jette
The Gut Microbiome is KEY to optimal health.
The OMS site & forum are brilliant! Thanks, everyone! :D
Dear Never37,
so sorry to learn of your symptoms and the alarm that they give you!
I would like to reinforce Jette’s advice to seek professional help, a neurologist first of all, but possibly also other specialists, who can do a thorough differential diagnosis (perhaps in a medical center or a hospital, where different disciplines work together and there are no long waiting periods for referrals?). It could be other things than MS! I don’t know what other really nasty things can cause such symptoms as you describe, perhaps strange bacteria (can the probiotics have been contaminated?), a fungus, a parasite, a tumor? Pure phantasy on my part, as I have no medical background! But please, insist on having every possibility checked!
If a number of doctors agree that it must be MS and nothing else, ask them whether a course of steroids might help short term.
Adopting all the lifestyle changes and using everything that is anti-inflammatory, is a good idea, but all these measures help long term. In light of the rapidity of your deterioration I would lose no time to have every problem excluded that might call for immediate action.
You must feel terribly scared and depressed! I wish you every luck in dealing with this crisis!
All the best!
Zoë
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