Page 1 of 1

Fluctuations in my condition

PostPosted: Sun Apr 24, 2016 1:48 pm
by Mars
Do any of you experience similar fluctuations? I'm usually at my best in the late evenings - and then the next morning I sometimes feel I've lost it all again. An example from yesterday: my husband and I were invited to a wedding where we stayed the night at the hotel where the reception was held. It was an enjoyable if strenuous day for me and I was a bit worried about sleeping in a strange bed, partly because I sometimes have trouble getting out of bed to go to the loo. Anyway by the end of the evening I was walking better than I had been for several days. When we reached or room I was somewhat disconcerted to discover a step upwards into the bathrom and wondered how I would cope in the night. However when nature called four hours later, I not only got out of bed very easily but also took the step in my stride - without thinking with my weaker leg! Then - another three hours - later things had ground to a halt again. Getting up was more difficult and no way would my weaker leg do that step!! Does anyone have an explanation for things like this? Actually as long as I keep having these good moments I feel encouraged, but it's difficult to understand what's going on! Anyone have any thoughts?

Re: Fluctuations in my condition

PostPosted: Sun Apr 24, 2016 1:55 pm
by west
Strangely enough, after working nightshifts, i find my balance issues to be much reduced. One morning i could read small prints without my glasses, +2.25. After a good sleep it turned back to normal, but it makes you wonder....

Re: Fluctuations in my condition

PostPosted: Sun Apr 24, 2016 4:32 pm
Hi Mars

Yes, I experience fluctuations all the time, and I can't find a rational explanation! I wonder if it is because of things we do without really noticing? For example, we sit on a chair that is slightly too hard or too soft, or lie in bed in a way that, isn't particularly good for us. I also think that subtle changes in temperature may have something to do with it. Like West, I often find that if I have been particularly active at work, by the time I get home my balance/mobility is greatly improved. Then I have a restful day off and my legs grind to a halt.

My physio once said that the fact that our bodies can sometimes do certain things is proof that we haven't completely lost that function, so look on these things positively!


Re: Fluctuations in my condition

PostPosted: Mon May 30, 2016 7:26 pm
by Alex
I'm very stiff mornings. I'm sure it's a combination of age, MS and exercise (activity) the night before.