32 posts Page 1 of 4
Hello All. Today I became aware of Chlamydia Pneumonia and its hypothesised role in MS onset, thanks to Susie from our forum. Seemingly more open-minded neurologists claim that this common bacterium in MS can be treated effectively with the anti-biotic minocycline (100mg twice per day for 21 days), a drug that George regards as very promising.

Here's a bit on it: http://www.msrc.co.uk/index.cfm/fuseact ... ageid/741/

Also, the Catalyst programme on the ABC (in Australia) will be presenting this issue on Aug 23rd (again, thanks to Susie's keen eye for developments in the area).

Is this all too good to be true or should I be racing off to the GP immediately to get my prescription?

KInd regards.
JLC
Hi J,

I got all that from this forum and then posted it to our Facebook group!

But goodonya for sharing!
Cheers,

Sue

OMG December 2011 OMS January 2012 OMS Retreat March 2012 Benign MS Sep 2015
Two Very Mild Relapses since diagnosis. Copaxone May 2013 No new lesions on MRI since diagnosis
I wish there was a like button on this forum!


Janice
Diagnosis Apr 2010, Coeliac Nov 2010. Procrastinated a bit. Fully OMS Sept 2011.
Meeeeeee tooooooo!!!!!
Cheers,

Sue

OMG December 2011 OMS January 2012 OMS Retreat March 2012 Benign MS Sep 2015
Two Very Mild Relapses since diagnosis. Copaxone May 2013 No new lesions on MRI since diagnosis
Hello there,
The treatment for CPn is slighly more onerous than suggested in your link.
The following link details treatment, which constitutes a number of powerful antibiotics over a protracted period. It is not something to be undertaken lightly.
http://www.davidwheldon.co.uk/ms-treatment1.html
Cx
So who is buying this Chlamydia story?

I'm not sure either way, but it certainly seems reasonable.

I believe one person posted that they have been on the abx regiment with good results - but I'm curious if others have tried it with good/not so good results?

Thanks,
Chris
Hi all I'm new to here but not new to this minocycline and chlam. pneum theory. I'm actualy starting my course of antibiotics tomorrow.. a little nervous mind you.. and it is as stated before a bit more than just mino.
Its a course of multiple anitbiotics and aspirin etc a multitude of things carefully planned out over 24 months (at the moment), and through the doctor i am seeing (i'm unsure if different course theories are available right at this time)

I have had my vascular ultrasound and am showing signs of loss of and/or depleted vertebral vein flow so.....

I'm going to give it a try........

From
'Nothing to lose' Beth

LOVE this forum!!! :D
If I can ask - are you doing your abx treatment through a neuro/doctor? Is the combined abx treatment something that is accepted - or still on the fringe/experimental side?

Have you had MS for a while?

Regards,
Chris
(and best of luck!)
Chris this is not accepted by Neurologists. The main problem being lack of evidence based trials. There is a doctor here in Oz who is very interested in the relationship between MS, CPn and CCSVI. He is the one who started my treatment and many others. He is monitoring our progress and I can say for one that I have had a massive improvement in my jugular blood flow over and above that which was gained through angioplasty. I also have slow steady improvement in some of my symptoms. There is a group of us on facebook who share our experiences and offer each other support. If you're interested PM me and we can go from there.

You might also be interested in watching this http://www.youtube.com/watch?v=68zYTzTlTlk It goes a long way towards explaining why the protocol is so involved and lengthy. I also recommend watching the Catalyst Show. I have been involved in that and it will hopefully cover a lot more.

Cheers,
Vicki
I'd agree!

I'm being monitored by a vascular specialist and so far even in this first week exactly what was explained and expected by us has happened! I have got hugely decreased flow but am unable to have angio so antibiotics for me and so far so good.
Catalyst this thursday at 8pm... can't wait!!!

Oh and first MS symptoms 1998
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