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Expiriences with / Alternatices to Hytrin (terazosin)?

PostPosted: Tue Aug 13, 2013 5:43 pm
by reto
My neurologist kind of said that I was control freak when I told her that I was going to have a video-urodynamic testing. After all my bladder symptoms are weak and the urologist I saw a few month ago wrote that not the slightest neuropathological consequence of my MS on the urine tract could be proven.

Now urodynamics show that I have a weird relaxation/contraction pattern on releasing urine and the cystoscopy shows that my mussels in bladder "look like the mussels of a body builder". Also too much urine (170 ml) remains in the bladder after voiding.

The urologist said this would be quite typical for MS. He said that I urgently need to start treatment with Hytrin (terazosin) or my kidney might get damaged.

I'm not a fan of medications so I'm wondering if there are alternatives (none according to the urologist). Does anyone has experience with this drug or with other anti-hypertensives? Or has similar symptoms and other solutions? Maybe the over-tension is just because I'm such a control freak....


Re: Expiriences with / Alternatices to Hytrin (terazosin)?

PostPosted: Tue Aug 13, 2013 5:54 pm
by korimako
My GP told me to 'double void' - after the urine starts and is in full low, half stand up and stop the flow, hold for a count of 10, then sit down and release to fully empty the bladder. This helped me manage bladder urgency until OMS improvements happened, and now I don't have any problems. A wonderful part of recovery ;-)

Re: Expiriences with / Alternatices to Hytrin (terazosin)?

PostPosted: Tue Aug 13, 2013 6:03 pm
by Cinderella
I'm not an expert, but I'm sure I read that low dose naltrexone can help with urinary problems. Might be worth a search on this site.

Re: Expiriences with / Alternatices to Hytrin (terazosin)?

PostPosted: Wed Aug 14, 2013 7:58 am
by reto
Thanks for your replies. I definitively have to try the double-voiding technique. I think this is not incompatible with using the medication at least for a while. I might want to try LDN if the Hytrin doesn't have the desired effect.

Re: Expiriences with / Alternatices to Hytrin (terazosin)?

PostPosted: Fri Sep 13, 2013 4:16 pm
by reto
Hi Korimako

I've been talking to my physiotherapist about the double-voiding technique your doctor recommends. He recommended not to apply it as this interferes with a coordinated contraction/relaxation movements. He thinks that it's better I train my muscles in some dry-run exercises.

I've stopped taking Hytrin as it didn't have clear benefits but quite some side-effects. I will now learn some pelvic floor exercises and have another examination in one year.


Re: Expiriences with / Alternatices to Hytrin (terazosin)?

PostPosted: Tue Aug 19, 2014 4:57 pm
by reto
So one year has passed. Some progress in that I usually only need to get up once per night. On the other hand I'm having more often problems holding it. When I go to toilet I ussually make 2dl of urine, ocasionally even less. Not sure how much remains in the bladder.

I decided to see a specialised physiotherapist to make sure I make those pelvic-flor exercises correctly. Decided not to have that painfull urodynamic examination again, for now.

After cancelling the urodynamic examination the neurologist got a scary letter from the hospital that this would be very dangerous. That I had a detrusor pressure of 76cmH2O during the filling phase of the bladder and that this will inevitably lead to damages of the urinary track and could lead to loss of the kidney function.

I can't find little information about this detrusor pression.

Did anyone have it tested too? Or, knows ways to deal with it? So far I've been doing pelvic-floor exercises and listening to an overactive-bladder hypnosys download.