Update... I had a follow-up meeting with the MS Clinic last week. The new MS nurse had gone through my file thoroughly. (The first time this has happened!)

She was confused about my statement that Dr. S had told me that I had Progressive Relapsing MS. His notes indicated that I had Relapsing Remitting MS with no resolution between episodes... I don't see the difference!

My decision to not take DMD stands. I really don't care what label is tagged to what I have.

My observation: no wonder MS patients are confused! If the neurologists change their labels it is hard to keep things straight. AARGGG! :-)

Just thought I'd vent! :-)