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Re: Disease Modifying Drugs

PostPosted: Fri Jun 06, 2014 8:18 am
by CdeGrasse
Hi Ted - you should definitely megadose to get your level up to the desired range (150 to 250). Everyone is different but generally 4,000 to 5,000 IU is just enough to keep you steady.

I actually did two mega doses. The first got my level up from 35 to 85. The second got my level up to 150. I then went to a daily dose of 10,000 IU with an occasional day of 20,000 .

I now take 10,000 IU on day's hen I dont get sunshine. On days that I get at least 1/2 hour of sunshine I take 5,000.

I can't remember what my mega doses were but I think the first was 150,000 IU and the second was 100,000 IU. There is a formula to help calculate amount needed on the OMS forum...

Hope this helps.

Claire

Re: Disease Modifying Drugs

PostPosted: Fri Jun 06, 2014 4:49 pm
by Ted
Test was done in USA, this is after over a year Vit D 5000IU supplement

Type results Range
Vitamin D, 25-Hydroxy 50.8 30.0-100.0 ng/mL

Re: Disease Modifying Drugs

PostPosted: Sat Jun 07, 2014 4:44 pm
by CdeGrasse
Hi Ted - your level is still a bit low. For optimum protection from MS relapse Dr. Jelinek recommends a level of 175 to 250 nmol/L. Your level is around 130 (I can't remember the exact conversion factor). I'd consider a week or two of 10,000 IU a day.

Check out the info about vitamin D on this website. Somewhere in here is all the info needed.

Claire

Re: Disease Modifying Drugs

PostPosted: Sun Jun 08, 2014 9:04 pm
by Ted
Vit D, levels

Its the warm time of year here now, and getting outside often to soak up the sun. I will look up the formula and conversion. I was thinking the last test was bit low, for MS concerns.

Thanks for the advice,

Ted

Re: Disease Modifying Drugs

PostPosted: Mon Jun 09, 2014 9:56 pm
by PAPAGEO
Dont know what they think in the UK about DMDs. All I know is that since I was put on Tysabri alongside a mediterranean diet free of saturated fats , red meat and dairy products I have peace of mind following some relapses that confined me to a wheel chair for a short while.
I found some sports that require concentration such as fixed target shooting helpful. Maybe the noise of the fire arm excites the brain....
DMD s are not THE solution but a compromise.

Re: Disease Modifying Drugs

PostPosted: Wed Jun 18, 2014 5:45 am
by Ted
Natural Course Status

I am following the fish oil protocol with Wild Alaskan Salmon Oil (capsule) or Sockeye Salmon. Feeling boast to energy.

Also up the Vit D (doing this for two weeks) level for days I am not in the Sun.

Going to the local public pool, using spray sunscreen. Doing this once or twice a week for 1 to 2 hrs. using the shaded area about half the time. Walking in the water across the pool several times per visit. Feel stronger and calmer over all. Giving some thought to swimming laps in the near future.

Meditating most days, I do breath control and sometimes listen to Isochronic Tones.

Over all very optimistic that I am on the correct course being on a Mediterranean diet, with the before mention activity.

I should note that a few months ago, I started "Feverfew" twice a day, and Vit B supplement in the morning and Magnesium in the evening. These are the ingredients of "Migrelief" which was suggested several months ago to ease Migraines, which have decreased significantly.

Re: Disease Modifying Drugs

PostPosted: Sat Jun 21, 2014 12:17 am
by Susan Doumbos
Ted,

Are you trying to get the benefit of sun exposure whilst swimming in a pool with sunscreen on? In the shaded areas? I don't think that will be helpful for MS. We all need to expose our bodies to the sun, without sunscreen, as often as possible without burning the skin. This is not just for the vitamin D, but also for the other undiscovered benefits that sunlight exposure confers.

Also, the Mediterannean diet is not the same as the OMS diet.

Re: Disease Modifying Drugs

PostPosted: Sat Jun 21, 2014 7:40 pm
by Ted
Sue, I expose most of my body to the Sunlight for a brief period of time before putting on sun screen. Though with spending 2 to 3 hours at the pool I need to mange exposure with shade and spray sunscreen. Your comment is good reminder to Sun some before using screen.

Regarding Diet, I use the term Mediterranean to describe a plant-based diet with seafood. Swank MS Diet is the basic foundation, but have allergies to Milk and have removed all diary except egg whites (from local rage free chickens) occasional. Removed all red meat (had drifted away from that and understand the subject better now). I have chosen seafood (mostly Sockeye Salmon at this time) and removed chicken, and other swank lean meats from my diet. Watching my saturated fats from allowed food groups.

What is your concern with the term Mediterranean Diet?

Re: Disease Modifying Drugs

PostPosted: Wed Jun 25, 2014 12:08 am
by Susan Doumbos
Ted,

The term Mediterranean Diet refers the diet eaten in the Mediterrannean area, which includes many very healthy elements, some of which are not healthy for people with MS (e.g. dairy products). It is different to the OMS diet, although there are some similarities. I think it is important to be clear about which diet we are referring to: the OMS diet OR the Mediterranean diet. They are not the same, and to class them as so may confuse others.

There are many diets out there which purport to assist PwMS, and it's important also that we don't confuse one with another. The OMS diet (as far as I know) has the most rigorous evidence to support it's recommendations.

Of course, there are common threads in all of the diets: large amounts of fresh fruit and vegetables.

Re: Disease Modifying Drugs

PostPosted: Fri Jun 27, 2014 11:52 pm
by Ted
Sue,

You are correct, OMS Diet is not the same as Mediterranean Diet. Mediterranean area type of diet is how I heard it refereed to and caused a minor mix up. I agree that OMS diet is the healthiest choice for several reasons. Thank you, for catching my unintentional miss-label.

Ted