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Hi everyone!

I've been utilizing this forum as a means to cope / educate my wife who has MS.
My wife is 32 years old and our story is rather uneventful.

Almost 10 years ago she had a bout of numbness with her legs, we went to a chiropractor and it seemed to resolve the issue. During that time we attempted to get some critical illness insurance (both of us), unrelated to the above issue, it was just something we were wanting to do.

She had gone to the neurologist who took her story (numbness) and 1 MRI and diagnosed her with MS; not spinal tap, nothing more than 2 MRI's and a verbal admittance of a symptom. A second Neurologist disagreed, but my wife was labelled with MS at 23 years old. We were escorted back into the neuro's waiting room and then brought into a room to discuss DMD's with a nurse. All talk of diet, cannabis, meditation was scoffed at by both the nurse and the neuro.

6 months later we returned for a followup, my wife had some minor numbness that seemed to be directly related to stress (she has always been a stress cause, general anxiety); the neuro asked me to leave the room as I was adamant we had a false diagnosis. I refused to leave the room and asked about CCSVI and LDN, she scoffed at both and told me that I would be the cause of my wifes decline with this disease as I was telling her not to take the drugs (my wife has outright told me she doesn't want to take the drugs after her own research)

So here we are almost 10 years later, during the past years we lived our 20's with a lot of "enjoyment". We had dual income, no kids, I started a business and we travelled a lot. We had our first child a year ago, at which time we ended up moving to our first house... a lot of firsts, a lot of stress.

3 months after baby was born my wife hand stopped working. She had experienced extreme sleep deprivation as is expected with a newborn (I helped where I could!), one day her hand stopped working. I immediately started researching diet as we were very unhealthy (junk food, dairy, gluten, processed foods) and came across the Swank, Wahls and OMS. After removing dairy, gluten, booze her hand came back in a month, she still gets bouts of weakness or burning, but we are pretty confident thats directly related to that relapse.

She saw a naturopath and ran an allergy test, she is very sensitive to eggs, pineapple, almonds and mushrooms. She was also put on a regiment of Vitamin D, High GLA oils (fish, hemp), vitamin B and Calcium / Magnesium. So now we are following OMS as closely as we can, we still have some wine from time to time. Overall my wife is doing great, but she does get some weakness in the other hand sometimes and the burning does happen from time to time.

Whenever she has this she gets incredibly anxious, which I feel spurs on either "phantom" symptoms or flares up existing damage.

At this stage she doesn't want to do the DMD's, I don't blame her. My research online is showing that so far she has a very mild case of RRMS and if we stick with the OMS diet there is a good chance she can maintain or eliminate these symptoms.

Sorry for the rant: to the point: At what stage do you consider DMDs if your course is similar to my wives? Is anyone here following the stem cell advancements?

My goal is to eventually get my wife on this forum, baby steps. The overall discussion of MS sends her into a panic (nobody in our family knows and its been 10 years!). We are planning to have another child soon, but its very difficult to be the rock and support without venting (thank you for this forum).

Any feedback, general comments, encouragement is greatly appreciated.

Thanks everyone!
I am 36yo and newly diagnosed (4/2/15). I have embraced the OMS lifestyle but am also looking at medication. I have a one-year-old son and I feel obligated to do all I can for his sake. I am right now choosing between Tecfidera and Aubagio. I've found that even though Neuros are missing a huge part of the puzzle by neglecting diet (even mine who is world renown), they don't advise drugs unless they believe the long term benefits outweigh the risk.

Regarding stem cell technology, there are two types being pioneered. Mesenchymal Stem Cells can take the form of any cell. They harvest yours, multiply them, and inject them into you. They are believed to heal damage and modulate disease progression. Hematopoietic Stem Cells are only able to become immune system cells. They are administered through HSCT whereby they knock your immune system out with chemo and reboot your system with your cells. Many are in very long term remission after the procedure. Though they've increased safety with new non-myeloblative procedures, it's not without risk. I'm looking into both procedures.

I'm very sorry for you and your wife having to go through this. I'm even more sorry she's having difficulty accepting it. I do understand, though. Acceptance would definitely make it easier to start fighting this rotten beast. If I were to only engage in one therapy it would be OMS. It makes most sense and the only side effect is a healthier you. Good luck.

Mars
Feel free to vent u need support too :D
Dx 1992 OMS 25-2-09
Haymaker,

I noticed you said you guys gave up alcohol as part of following OMS. It may not be that big of a deal to you, but I found the following quote from the latest HOLISM study to be a little bit of a silver lining:

"In contrast, moderate alcohol consumption was associated with better quality of life than low alcohol consumption; only a very small proportion of the group drank heavily, and this was associated with the worst quality of life. Moderate alcohol consumption was also associated with lower levels of disability."

I'm off to drink a nice full glass of red wine.

Mars
Same!
Dx 1992 OMS 25-2-09
Thank you everyone for the responses. We do enjoy our wine (a glass or 2 if brave), which my wife has reported to have very few ill effects.

We also use cannabis, more so now for help sleeping. I know a few others with MS that use Cannabis oil with amazing results, so we will look into that as well.

I really feel the recent news about stem cells and other potential treatments warrants us from getting on a DMD asap. Remember, we are going on 10 years now and maybe we are just lucky, but that was 10 years of a lifestyle that could be determined as ANTI OMS. So she wants to give this OMS a real try before committing to DMD's.

Here in Canada it is very hard to find LDN and the neuros seem to be completely against it (we've tried).

Right now her regiment is this:

Chiropractic once a week
Daily exercise (we have a home gym and she runs)
Meditation (working on it)
Positive Thinking
All of the supplements I mentioned.
Maybe that glass of wine
Possibly some cannabis (we are talking 1 pull off a vaporizer at most. I have way more ;)
Sleep by 10-11
OMS Diet.


It is our hope that this will keep her healthy, if not stabilize and reverse her very mild symptoms until a more suitable treatment is available.

Are we out to lunch here? Are we being Naive? I've read Georges book and my gut tells me we aren't (my wife told me this herself), so I guess im looking for encouragement or acknowledgement that we are on the right path?
I am not qualified to advise, but I will list a few things that I would be considering.

First, regarding DMDs neurologists will tell you that waiting until a person has bad symptoms and wants them reversed is waiting until it's too late. It takes between 10 and 15 years for someone not taking DMDs to move to SPMS.

Second, it takes 3 to 5 years to stabilize on OMS. A lot of people use DMDs during that time.

Third, Copaxone is natural to the body and has a 3x week dose now.

Fourth, Montel Williams strongly advocates the use of cannabis for MS symptom relief.

Fifth, a lot of people take your path and do just fine. Especially on OMS Maybe it's the correct way.

Again, I know nothing. I'm just trying to help you work through the thought process. Sorry if I've muddied the waters.

Mars
Your wife and I have nearly identical symptoms : )

I have chosen not to take DMDs.

Almost one year in and no relapses. Numbness in feet slowly getting better!

I avoid wine as I seem to flare up. That said I'll enjoy some on my birthday!

All the best. You are a great hubby!
Hi Haymaker,

My story: 10 years and no DMD's. Just started Copaxone injections after a relapse. Don't know why I didn't start earlier. Been injecting for two weeks. Wished I had started earlier. Every individual is different but before making the decision to use Copaxone I think the idea of injecting daily made the idea all too hard. The autoinject is child's play; the easiest thing I have ever experienced in living with this disease. Every day the injections remind me that I'm doing everything I can to live well with MS.

Best wishes,
Donna
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