Hi everyone!
I've been utilizing this forum as a means to cope / educate my wife who has MS.
My wife is 32 years old and our story is rather uneventful.
Almost 10 years ago she had a bout of numbness with her legs, we went to a chiropractor and it seemed to resolve the issue. During that time we attempted to get some critical illness insurance (both of us), unrelated to the above issue, it was just something we were wanting to do.
She had gone to the neurologist who took her story (numbness) and 1 MRI and diagnosed her with MS; not spinal tap, nothing more than 2 MRI's and a verbal admittance of a symptom. A second Neurologist disagreed, but my wife was labelled with MS at 23 years old. We were escorted back into the neuro's waiting room and then brought into a room to discuss DMD's with a nurse. All talk of diet, cannabis, meditation was scoffed at by both the nurse and the neuro.
6 months later we returned for a followup, my wife had some minor numbness that seemed to be directly related to stress (she has always been a stress cause, general anxiety); the neuro asked me to leave the room as I was adamant we had a false diagnosis. I refused to leave the room and asked about CCSVI and LDN, she scoffed at both and told me that I would be the cause of my wifes decline with this disease as I was telling her not to take the drugs (my wife has outright told me she doesn't want to take the drugs after her own research)
So here we are almost 10 years later, during the past years we lived our 20's with a lot of "enjoyment". We had dual income, no kids, I started a business and we travelled a lot. We had our first child a year ago, at which time we ended up moving to our first house... a lot of firsts, a lot of stress.
3 months after baby was born my wife hand stopped working. She had experienced extreme sleep deprivation as is expected with a newborn (I helped where I could!), one day her hand stopped working. I immediately started researching diet as we were very unhealthy (junk food, dairy, gluten, processed foods) and came across the Swank, Wahls and OMS. After removing dairy, gluten, booze her hand came back in a month, she still gets bouts of weakness or burning, but we are pretty confident thats directly related to that relapse.
She saw a naturopath and ran an allergy test, she is very sensitive to eggs, pineapple, almonds and mushrooms. She was also put on a regiment of Vitamin D, High GLA oils (fish, hemp), vitamin B and Calcium / Magnesium. So now we are following OMS as closely as we can, we still have some wine from time to time. Overall my wife is doing great, but she does get some weakness in the other hand sometimes and the burning does happen from time to time.
Whenever she has this she gets incredibly anxious, which I feel spurs on either "phantom" symptoms or flares up existing damage.
At this stage she doesn't want to do the DMD's, I don't blame her. My research online is showing that so far she has a very mild case of RRMS and if we stick with the OMS diet there is a good chance she can maintain or eliminate these symptoms.
Sorry for the rant: to the point: At what stage do you consider DMDs if your course is similar to my wives? Is anyone here following the stem cell advancements?
My goal is to eventually get my wife on this forum, baby steps. The overall discussion of MS sends her into a panic (nobody in our family knows and its been 10 years!). We are planning to have another child soon, but its very difficult to be the rock and support without venting (thank you for this forum).
Any feedback, general comments, encouragement is greatly appreciated.
Thanks everyone!
I've been utilizing this forum as a means to cope / educate my wife who has MS.
My wife is 32 years old and our story is rather uneventful.
Almost 10 years ago she had a bout of numbness with her legs, we went to a chiropractor and it seemed to resolve the issue. During that time we attempted to get some critical illness insurance (both of us), unrelated to the above issue, it was just something we were wanting to do.
She had gone to the neurologist who took her story (numbness) and 1 MRI and diagnosed her with MS; not spinal tap, nothing more than 2 MRI's and a verbal admittance of a symptom. A second Neurologist disagreed, but my wife was labelled with MS at 23 years old. We were escorted back into the neuro's waiting room and then brought into a room to discuss DMD's with a nurse. All talk of diet, cannabis, meditation was scoffed at by both the nurse and the neuro.
6 months later we returned for a followup, my wife had some minor numbness that seemed to be directly related to stress (she has always been a stress cause, general anxiety); the neuro asked me to leave the room as I was adamant we had a false diagnosis. I refused to leave the room and asked about CCSVI and LDN, she scoffed at both and told me that I would be the cause of my wifes decline with this disease as I was telling her not to take the drugs (my wife has outright told me she doesn't want to take the drugs after her own research)
So here we are almost 10 years later, during the past years we lived our 20's with a lot of "enjoyment". We had dual income, no kids, I started a business and we travelled a lot. We had our first child a year ago, at which time we ended up moving to our first house... a lot of firsts, a lot of stress.
3 months after baby was born my wife hand stopped working. She had experienced extreme sleep deprivation as is expected with a newborn (I helped where I could!), one day her hand stopped working. I immediately started researching diet as we were very unhealthy (junk food, dairy, gluten, processed foods) and came across the Swank, Wahls and OMS. After removing dairy, gluten, booze her hand came back in a month, she still gets bouts of weakness or burning, but we are pretty confident thats directly related to that relapse.
She saw a naturopath and ran an allergy test, she is very sensitive to eggs, pineapple, almonds and mushrooms. She was also put on a regiment of Vitamin D, High GLA oils (fish, hemp), vitamin B and Calcium / Magnesium. So now we are following OMS as closely as we can, we still have some wine from time to time. Overall my wife is doing great, but she does get some weakness in the other hand sometimes and the burning does happen from time to time.
Whenever she has this she gets incredibly anxious, which I feel spurs on either "phantom" symptoms or flares up existing damage.
At this stage she doesn't want to do the DMD's, I don't blame her. My research online is showing that so far she has a very mild case of RRMS and if we stick with the OMS diet there is a good chance she can maintain or eliminate these symptoms.
Sorry for the rant: to the point: At what stage do you consider DMDs if your course is similar to my wives? Is anyone here following the stem cell advancements?
My goal is to eventually get my wife on this forum, baby steps. The overall discussion of MS sends her into a panic (nobody in our family knows and its been 10 years!). We are planning to have another child soon, but its very difficult to be the rock and support without venting (thank you for this forum).
Any feedback, general comments, encouragement is greatly appreciated.
Thanks everyone!
