yes, this is a difficult question, on which I do not want to offer any advice, but as you are asking for opinions, even if they are personal, biased or not so well informed, here is mine:
I am a bit surprised that he is on Tysabri, as to my knowledge
a) Tysabri usually is used rather as a second line treatment (when other medication did not work well enough and MS progressed nevertheless aggressively),
b) Tysabri is accompagnied by PML risk (I consider PML shere horror! A friend of an aquaintance got it. She is now completely incapacitated, bedridden, does react somehow to hearing her Christian name, but not much more, I was told. MS in all likelihood would never have taken her to that state! Or only after decades.)
c) Tysabri produces a rebound effect. If itâ€™s being discontinued, disease activity comes back with increased force, as Veg pointed out (Cf. https://overcomingms.org/news-research/ ... b-tysabri/
As far as I know, Tysabri is considered by and large â€œsafeâ€ in respect to PML, even if a person is JCV positiv, as long as it is taken no longer than two years
and the person had not been submitted to immune suppression previously. There is now research that indicates, that half the amount of Tysabri (only every eight weeks) might be equally effective, but would reduce the PML risk. See on this website under â€œOther MS Newsâ€, October 22, 2015, â€œStudy into extended Tysabri dosage suggests PML risk could be reduced without affecting drugâ€™s efficacyâ€:https://overcomingms.org/news-research/ ... -efficacy/
Like Veg I would probably rather opt for another drug if I had to choose one for myself (But this is theoretical: I was never offered any drug except courses of steroids during relapses and never have taken any. By now â€“ 16 years after diagnosis â€“ I do no longer have relapses [so probably SPMS by now]). If already on Tysabri I would probably think about changing or I would stop after two years for safety reasons or â€“ if only on half dosage every eight weeks â€“ perhaps after one year more.
If I remember correctly, many people on this forum have taken medication for a couple of years and then stopped, when they felt a) that they had stabilized sufficiently and b) that the OMS diet and lifestyle had enough time to become effective (for some that may have been after 2 years, for some after 5 years [?]). I therefore think that it is a reasonable expectation that your son can stop taking drugs in the future. Whether in two years time or earlier or later, only he himself can decide. Although OMS supports a â€œWhatever it takesâ€ approach, including drugs, there is quite a number of OMS followers who have decided to rely on OMS alone (as I do).
What is CAM?
I think there is no way to decide, whether the drugs or OMS did the job, when there is stabilization and improvement.
Perhaps the lipid profile of the blood (HDL and LDL cholesterol, triglycerides) offers a small clue as to whether OMS has already taken effect: If these levels are optimal, then OMS has started working. By â€œoptimalâ€ I mean, what Dr. Michael Greger advocates on his website http://www.nutritionfacts.org
(see e. g. http://nutritionfacts.org/video/optimal ... rol-level/
) or in his book â€œHow not to dieâ€ (that is LDL below 50â€“70 mg/dl; overall cholesterol below 150 mg/dl, better lower).
Just my thoughts.
All the best for your son!