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Any Gilenya or Tecfidera users?

PostPosted: Sat Feb 03, 2018 5:17 pm
by RACHEL77
Hi all

My Neuro would like me to come off Copaxone and move onto Gilenya or Tecfidera. His preference is Gilenya, I guess because of better efficacy. His reasons for me switching are sound, but, having spoken at length with a nurse a couple of days ago, I am feeling even less certain about which way to go!

I would appreciate hearing of other people's experiences with either of these drugs. I have been trawling this site but haven't found much first hand experience of Gilenya.

Many thanks!
Rachel

Re: Any Gilenya or Tecfidera users?

PostPosted: Sat Feb 03, 2018 7:46 pm
by veg
Have you seen if they have been covered in the latest book?

Re: Any Gilenya or Tecfidera users?

PostPosted: Sun Feb 04, 2018 10:51 am
by RACHEL77
Hi Veg

I am not sure I have the latest edition. Mine was published 2010. There is a short section discussing Fingolimod as a new and promising drug, but not much else. The conversation I had with the nurse threw up a whole host of possible side effects, so I really hoped to hear from people with first hand experience.

Rachel