Hi
Just an update on my decision regarding drug therapy.
I had an appointment with my neurologist yesterday. It has left me just as confused as before.
I was talking to two nurse's fìrst then the neurologist joined us.
The senior nurse who attended my last appointment where I spent a long time questioning tecfidero told me we had discussed gilenya. No we had not! I felt like I was in a episode of the handmaids tale, in which I was being brainwashed.
Eventually when I decided I was not going to waste any more energy on fighting a losing battle, I asked about the rebound effect of gilenya and was told it is no more so than any other drug.
When I would not let it go I was told there is a certain kind of steriod that can be taken once a month for 3 months, which, can help prevent a rebound effect.
As I will not have my mri until next week we suspended a exact decision until after this.
I left and breathed in fresh air.
I have to say as well as feeling tired of dealing with politician style sidestepping of questions I also felt angry.
I also felt an extreme sense of is this it?
Am I just expected to do what medical people say? When I am not sure if they listen to a word I say. Or if they can carry on from the conversation we had before!
Anyway I feel better for getting this off my chest.
Thanks for reading.
Be kind to yourselves!
Valley
Just an update on my decision regarding drug therapy.
I had an appointment with my neurologist yesterday. It has left me just as confused as before.
I was talking to two nurse's fìrst then the neurologist joined us.
The senior nurse who attended my last appointment where I spent a long time questioning tecfidero told me we had discussed gilenya. No we had not! I felt like I was in a episode of the handmaids tale, in which I was being brainwashed.
Eventually when I decided I was not going to waste any more energy on fighting a losing battle, I asked about the rebound effect of gilenya and was told it is no more so than any other drug.
When I would not let it go I was told there is a certain kind of steriod that can be taken once a month for 3 months, which, can help prevent a rebound effect.
As I will not have my mri until next week we suspended a exact decision until after this.
I left and breathed in fresh air.
I have to say as well as feeling tired of dealing with politician style sidestepping of questions I also felt angry.
I also felt an extreme sense of is this it?
Am I just expected to do what medical people say? When I am not sure if they listen to a word I say. Or if they can carry on from the conversation we had before!
Anyway I feel better for getting this off my chest.
Thanks for reading.
Be kind to yourselves!
Valley