Hi Michelle, if you are concerned, you should stop supplementing for two weeks and then resume at 35,000IU/week. This is obviously the right maintenance dose for you if your level has stayed constant.
However I do have a very recent personal anecdote to add here based on my high vitamin D levels and email correspondence with George. We should worry more about our levels being lower than 150-225nmol/L as that puts us at risk of a relapse."Hi George
I saw my GP yesterday for my annual catchup - if you remember she is that Aussie maverick that likes to support her patients positive lifestyle choices
We chatted for a while about my progress (MSQOL-54 up 4.5% - mental health score pretty much 100%). My last vit D test was 387nmol/L due to an unusually hot summer and lots of sunbathing. It's dropped now as I stopped supplementing for 2 weeks etc. Interesting that she was not at all fussed about this high level and said that the NZ guidelines for toxicity were that anything over 500nmol/L was cause for concern. Are you aware of this?
Interesting also that she wasn't worried about testing me again - she said maybe better she didn't as the other doctor in the practice gets excitable over the high vitamin D levels in her patients! She also took my blood pressure so she was seen to be doing something for the consult fee
That's great. What a sensible GP! I think she is absolutely right not to be concerned about that level, and I would only reduce the supplementation a tad during summer to sort that out. I agree with her that under 500 is probably OK, but didn't realise NZ was so progressive!
It makes me extremely happy to see you going so well. I am really impressed by the steady progression you make in exactly the opposite direction from what everyone with MS has done in the past. You are quite a trail blazer.