An update from me...Kat the Rat. Yes, I am still on the Coimbra therapy and happy with it. I have been on it since May 1, 2016 (a year and a half) and have had good energy since. So the fatigue is gone, although I do not have the energy I had pre-MS. But I can get through the day now without a nap and I even do cross fit now! Also, my incontinence isn't quite as bad either anymore. On the downside, none of my other problems went away. I still have the same degree of numbness and a bit of drop foot when I walk a lot (otherwise a heavy left foot and I just need to focus on engaging the ankle). It's a little wobbly, but it couldn't be too bad if I'm out hiking and stuff. Most people can't notice.
So...I do recommend the therapy. I was stable with OMS before going on it, but I have this extra assurance now and I have all this energy. It helped me regain half my life, it feels like
I like Dr Sanja and I feel safe with her. I am 140lbs and taking 100,000IU right now. I started at 50,000, but increased as needed to get my PTH between 1-2 (ideal in order to stop MS activity). Of course taking high levels like this has to be monitored. Drinking ~3L per day and avoiding high calcium foods or at least having them in just small quantities is necessary. My GP had to give me the requisition for the bone scan, but I had to pay for it ~$170. The other tests I do through a local naturopath and then I just email the results to Dr Sanja. Otherwise the GP and neurologist are not supportive medically but seem happy to see the results.
So we, as Coimbra followers, are really 'on our own'. But there's really no down side, so long as you drink enough and take your supplements and follow the diet (my experience). Because I had too much Ca in my urine in the first 6 months, I had to cut nuts down to like 1Tbsp a day (if that!), and with the OMS diet I was feeling REALLY restricted. So I have added lean chicken and turkey back into my diet (white meat as much as possible) and once a week lean beef/liver. This was based on my Natropath's recommendation. I need to survive somehow! But I still keep sat fat very low and am following the OMS diet in intent:) I just had to modify it for what works for me.
if you have any more questions, please send me a private message. I'd also love to hear from you and your experiences if you feel like keeping in contact. I know when I started I reached out to others on OMS doing the Coimbra protocol (about 5 people) and it made me feel safe. Nobody had anything negative to say.
Also a heads up -I felt really tired during the first 2 weeks of the protocol. It was after the first 2 weeks that my energy came back and then gradually improved. Then I got to my current energy level about 2months after starting the protocol. Good luck and take good care!