Time has passed and I've since read this recent article about Cerebral Microbleeds http://www.ms-uk.org/june15
After reading this and with everything that I've described here, I'm almost certain that this is what I've inadverantly caused. It all fits, the nature by which the initial symptoms appeared, how they have fluctuated whenever I tested to see if doing it again had any effect, and how it's further influenced by doing exercise that gets the blood pumping. I can't help feeling that there have been and likely will be many people who find themselves in this position and don't report this part to their doctor through embarrassment or a feeling of shame. Both of which should not be felt. On my part, I feel it's not solely been this, but also combined with many years of high amounts of stress, high blood pressure, staying indoors and social isolation.
Recently I have been experiencing almost constant headaches, and just recently I experienced extreme pain for the first time in my spine, pelvis, in random patches over my arms and legs and the backs of my hands and tops of my feet.
In my mind, from putting everything together so far, this is what's happening.. (feel free to comment)
There is a Cerebral Microbleed happening, initially caused by the reasons above. This occurs already inside the membrane the brain is inside so there is no crossing of the blood brain barrier, this causes an auto immune reaction as reported here : https://overcomingms.org/a-single-drop- ... ink-in-ms/
I've described the constant sensation in my head (since diagnosis) to doctors as feeling like someone had poured battery acid into my brain. Given what's happened, I think that it's either a reaction, or the immune system's attempt to clear blood out of the CSF, where it shouldn't be. Further, the CSF of course leads down into the spine and out through the nervous system, so if there's blood in the CSF, it can get there too, the Immune system follows that as well. How at that point it's becoming confused with the myelin is what I don't get, there must be some kind of relationship between the foreign body in the CSF (blood) and myelin. The fibrinogen molecule?
What's been interesting and reinforced my understanding is that I just started on Tecfidera treatment. This was just as the bad physical symptoms began and they immediately waned a bit. This made me think "The immune system is being suppressed a bit" So, as an experiment I tried what the topic of this thread is all about again. Sure enough, I could feel the same symptoms happening again, albeit this time to a slightly lesser degree. Which made me reason that any kind of blood pressure exertion when you have a cerebral microbleed is antagonising the situation. I have also been trying to get regular physical exercise, and have also found that the symptoms were worsening after this too. (Although not immediately after) Under these circumstances, having a treatment which partially supresses the immune system, which although helps, made me think it was like manually emptying water out of a sinking ship, instead of finding and plugging the initial leak.
So now I don't know what to do? I *want* to follow the OMS lifestyle as closely as possible, and I am with the diet, meditation and supplementation. I just don't know what to do about the physical side of it, because with everything that's happened, I've been able to demonstrate and reproduce that the increased blood pressure is causing the microbleeds to worsen, and in turn cause more symptoms.
I also need to find a way of convincing my doctor to listen (even just try to get an appointment with him) which is sad that I need to do, but as I explained when I first tried to broach the subject with him quite a while ago, he just said 'Doing that is perfectly natural' in a reassuring/dismissive tone. Which I know perfectly well already and isn't why I was telling him. Everything I've read on this says that time is of the essence, it isn't something that you should just passively attempt to cope with.
Thank you for reading. Does anyone have any info, advice or recommendations about how to treat microbleeds? It seems it's a conclusion that research is only now associating with MS. Frankly, I'm now pretty convinced this is what's caused it all for me.