The Silent Passenger

March 28, 2018

The silent passenger

I recently passed the three year anniversary of my MS diagnosis. Strangely enough, the day passed without me realizing it. My recent MRI brought up a whole mixed bag of emotions. MS can be tricky and sometimes silent which means how I feel day-to-day doesn’t mean that there isn’t progression happening inside my body.

Hopeful, anxious, confident, scared and happy were some of the things I felt leading up to my scan. Am I doing enough? What can I do different? If I have new lesions what did I do to cause them?

A silent passenger

This is the reality of living with a sometimes silent passenger in my life. Most days I don’t even think of my MS, but then I will have a day that my body gives me strong reminders that absolutely things are different now. What I’ve come to be more OK with is that different doesn’t have to mean bad.

I appreciate that most of the time my body will let me know when I need to slow down and take better care of myself. It allows me time to reflect on what I have been doing, eating, stressing about or not addressing, and take some time to pause and give myself what I need.

There are even times when the wonderful supports in my life see these signs before I do and give me the nudge I need.

MS is something that I have, but it is certainly not who I am.

Virginia Dineen

9 thoughts on ‘The Silent Passenger

  1. Virginia
    You are an inspiration to me. The way you have dealt with your diagnosis and how you’ve tackled each challenge that came your way. I know there have been bad days but your positive attitude is amazing. Keep doing what your doing girl and I will continue to support you in anyway I can.

  2. Your blog resonated with me – especially the last line. After suffering six years of MS in the early 1960’s, I have now been in remission from MS for over 50 years. I have recently documented my return to health in my book A Journey to Creative Healing.

  3. Hi Virginia. Been there, done that. All of us with the “silent passenger” in our lives can relate to your words. The OMS program is such a sound assistant to help keep that pesky passenger as quiet as we can. 22 years from my diagnosis and although sometimes bothered by a few passing issues, I look forward to my retirement at the grand old age of 69 and many travels and adventures are in progress and more are planned. Cheers from another Virginia

  4. You are absolutely doing what you need to do. We are so proud of how you deal with the hand dealt to you, and we are here for you always. Keep on keeping on.

  5. Virginia,
    Too funny that had the same 3 year experience – simply forgotten. Now 3.5 years in and 2.5 years symptom free. My only daily reminders of MS are a daily drug regiment and the wistful salivation in the Steak section of the supermarket. That’s a small price to pay.

    Thanks for your words!

  6. I have lived with my diagnosis since the early 1980s.. with careful attention to diet and pacing myself I am able to lead a relatively normal life. Currently working as a complementary therapist, I find mindfulness and meditation a great tool to deal with stress. I have two grown up children, both born post diagnosis and although their early childhood was challenging, I managed my MS and to date: do not take allopathic medication.. Once prescribed steroids, I avoided them through a well chosen homoeopathic remedy. Good luck to everyone reading this blog. MS does not have to be a life sentence! C B

  7. I was diagnosed with relapsing MS six years ago …thankfully I have been able to lead a normal life with no re lapse to date. Yippee. The only change being that I have taught myself to control stress by not stressing about ‘stuff’ that in the big picture isn’t worth it & I couldn’t control -also it didn’t help my pins & needles. My diet is unchanged, my exercise ..well could do more really, so it’s really thanks to God I am still able to lead my usual normal life and my Avonex weekly. JBxx

    • Thank you for sharing JB – we are happy to hear that you have managed to remain relapse-free for 6 years. Best wishes for the future, OMS team

  8. Wow, that’s really inspiring and encouraging Cathryn. I have chosen to not take any medication thus far and am trying to manage my MS with other natural ways as well. I’m a big believer that the body has an amazing power to heal itself if we create an environment to due so!!

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