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26 June 2024

Live Well Hub members share their wellbeing advice

On the 27th June, the Live Well Hub turns one! We are so grateful to all our Hub members who have helped grow such a welcoming and supportive community for everyone affected by MS. To mark this significant milestone, we heard from some of our Hub members on how the Hub has helped them to look after their wellbeing.

Bill shares his journey and why the Hub community is so valuable

“I was diagnosed with Primary Progressive MS (PPMS) in May 2023. Stress was a very large contributor leading up to my diagnosis. Genetically, I am also predisposed within my immediate family. My mom and two of my sisters also have MS. Upon diagnosis, and having a scary outlook from family members, I knew I had to do everything in my power to fight back against this disease… with no time to spare.

“I found the Overcoming MS website within a couple of weeks and after countless hours of researching every professional, medical, and university study on combatting MS. All my research kept circling back to Overcoming MS being the best fact-based and complete Program to help each person manage their own life while navigating MS.

“I started the Overcoming MS Program in July of 2023 and I was adamant on adopting all the pillars. I wanted to control MS and not have MS control me. It didn’t take long for me to join the Live Well Hub, which connects members from all over the world into one united family.

“Not to sound corny, but it felt like a true family right away. Everyone was so welcoming and also very warm, sharing and uplifting. What struck me right away, was that there wasn’t any ‘negativity’ within the group! MS feeds off of stress, and negativity produces that attribute… so being in the Hub, positivity is exactly what we all need!

“If you’re recently diagnosed with MS, I would do two things:

  1. Do a lot of your own research and ask your neurologist as many questions as you can.
  2. Look at the Overcoming MS Program and do as much as you physically can to adhere to these pillars… And enjoy the comfort of a welcoming group of people that will be with you in solidarity on the Live Well Hub.”

Sue tells us her experience and her advice for others

“I found Overcoming MS in April 2023. Last year I had three relapses due to emotional stress, with one leaving me bedridden. I was constantly wondering how long it would take until I would be free of relapses. Of course, being relapse-free is still my goal, but this is not my focus so much anymore because I can honestly say that I am living my best life since starting Overcoming MS!

“Something happened inside my body and mind and I am feeling so happy and satisfied. I have never felt this way before in my whole life! All relapses have healed much faster and I am not so scared of getting a relapse anymore. Of course, I still have days when my body does strange things, but then I go to my personal journal which is full of valuable advice from myself and the community.

“I definitely know Overcoming MS works. For me, meditation is my key to healing fatigue in every situation. Also, my legs are completely recovered and I can run again every day. I am so proud of myself and the group that I can run and work again. This wonderful community is and was always there.

“I posted in the Hub on my most challenging days, when I was bedridden and dealing with cognitive disorders, fatigue, fear and not knowing if my situation would ever change again, and the support I received from everyone was the most valuable thing of all!! I felt no need to explain anything and was able to talk openly about all of my most intimate and sensitive thoughts. This is so incredibly valuable and helpful. To be able to be who you are and to show your real personality makes a big difference. There are always so many people who care about you and who feel responsible for helping you.

“The support of the group motivates me and gives me strength. But one thing is essential: to have a positive mindset and to believe in your body…

“My advice to you: Trust yourself and try to stick to the Program as much as possible. Surround yourself with inspirational people who support you. Listen to the needs of your body and find out what feels good for you. And please, read Professor George Jelinek’s book. ”

Claire explains why the Hub has been a game-changer

“The Live Well Hub seamlessly integrates all aspects of MS wellness into one user-friendly platform. From healthy recipes, listening to Podcast episodes, chatting with the community, to organising Essex Circle events, the Hub does it all effortlessly.

“The intuitive interface and robust features make it easy to stay on top of everything. It has been a game-changer, allowing me to control my MS activities with just a few taps. The Hub isn’t just an app; it’s a lifestyle upgrade. I highly recommend it to anyone looking to simplify and enhance their wellness management experience.”

Wendy shares her story and what she loves about the Hub

“I was diagnosed in March 2021 after years of ongoing weird symptoms that peaked one morning in mid-February 2021, when I woke with millions of ants “dancing” over my painful feet. The sensation spread into my ankles and calves until numbness, spasticity, and lead legs convinced me I had a serious neurological condition. The feeling then spread into my buttocks and lower back, as well as my shoulders, arms, and hands. I could barely walk or use my upper limbs. My head ached, my eyes were sore with double vision, and there was a tight feeling in my chest, like someone clamping it with a vice – I now know this to be the MS hug.

“I was admitted to hospital as an emergency, had an MRI the following day, and given the interim verdict of transverse myelitis, with a warning that further analysis could return a diagnosis of MS. Two weeks later, I got that diagnosis. And that was just the beginning. My desire to slow the progression of an unpredictable condition ravaged my mental health. Ambitions I’d had for years disintegrated as I succumbed to fear and a doomed future. I had to get back on track.

“I joined the Live Well Hub when it launched. I wanted to engage with other like-minded people, who share the mindset that with the right attitude, change, laughter, and a grateful heart, those with MS can live a happy, healthy life. There’s too much doom and gloom surrounding an MS diagnosis. I am not a diagnosis and never will be.

What I love about the Hub is the opportunity to meet others on a global scale. To socialise, share tips, advice, support, and recipes. To meet and greet the MS community. Support is vital. MS is a singular condition, but the path tread by each of us overlaps with someone else. No one should have to go it alone.

The Hub offers support, and for me, it’s seen as a social gathering of like minds.”

 


 

If you’ve not joined yet, why not sign up today? Click here to join our growing Live Well Hub community to get support for yourself and help others on their journey too.

Overcoming MS supports each person in different ways. Your outcomes will be personal to you.