Think you know MS? Let’s challenge assumptions this MS Awareness Week

This MS Awareness Week (20–26 April 2026), MS charities across the UK are coming together with a simple message: Think you know MS? Think again. While awareness of multiple sclerosis has grown, understanding hasn’t always kept up – and for people living with MS, that gap can have real consequences. But it’s also something we can change together. 

The hidden impact of assumptions

Together with our partner charities, we surveyed over 1,600 people with MS across the UK. The results reveal something many in the MS community already know: assumptions about MS are still shaping everyday experiences in ways that are often overlooked.

• Nearly two-thirds (65%) of people said they’ve felt judged or treated differently because of their MS.  
• Over 8 in 10 (81%) have heard comments like “you don’t look sick”.  
• Almost half (48%) have been questioned or challenged for using accessible facilities, such as toilets or Blue Badge Parking or priority seats on public transport.

What stands out most is not just how common these experiences are, but how they affect people’s lives over time: 

• More than two in 5 (41%) have avoided telling people they have MS. 
• A third (33%) have skipped seeing friends. 
• More than one in four (28%) have avoided leaving the house.  

This isn’t simply about misunderstanding; it reflects the emotional and practical impact that assumptions can have on confidence, connection and day-to-day life. However, with the right support, access to reliable information and a strong sense of community, many people find ways to challenge these narratives and redefine what’s possible for them. 

What needs to change

The survey highlights a key issue: 91% of people said a lack of knowledge about MS drives these assumptions, reinforcing the need for more informed and empathetic conversations. 

This MS Awareness Week, our focus goes beyond raising awareness alone; it’s about building genuine understanding.  

• Sharing and listening to people’s real experiences.
• Recognising that symptoms aren’t always visible.
• Avoiding snap judgements about what someone can or can’t do. 

And just as importantly, it’s about helping people with MS feel confident in what they can do – not just what others expect of them. 

MS: A diagnosis, not a destiny

At Overcoming MS, we believe something fundamental: a diagnosis of MS is not a destiny. While living with MS can bring challenges, and while misunderstanding and barriers do exist, a diagnosis does not define what’s possible. 

We see this every day in our community, where thousands of people are finding ways to stay active, building meaningful relationships and careers, and taking steps – big or small – to live well with MS.  

That’s why our work focuses on giving people the knowledge, support and confidence to make informed choices about their health and lives. For example, through our partnership with the University of Nottingham, we are exploring how people with MS can be better supported to stay in work, recognising the important role employment plays in identity, wellbeing and financial security. 

Through our MS: A diagnosis, not a destiny campaign, we continue to challenge outdated narratives and move towards a more informed, confident and empowered understanding of life with MS. 

How you can help

This week, we’re proud to stand alongside the wider MS community to challenge assumptions and share real stories that reflect the reality of living with MS. 

• Join the conversation using #MSThinkAgain.
• Help others understand what MS really looks like by sharing your story – email [email protected] or tag us in your posts. 
• If you’re living with MS, remember that your diagnosis does not define your future – and that support, information and community are available to help you live well.