An MS diagnosis can change everything. What someone hears next can change their story.

Watch the video "Nobody told me"

Nobody
Told Me

An MS diagnosis can change everything. What someone hears next can change their story.

Six people living with MS share what they wish they'd known at diagnosis, what they've discovered since, and what they want the next person to know.

The Film

Nobody told me...

Their experiences are different, but they share something important: the fear and uncertainty of facing an MS diagnosis without knowing where to turn.

Then they discovered a whole new story. Because their diagnosis, was not their destiny.

Watch the film

What I wish I'd known

“Nobody told me there were things I could do”

Cora

“Nobody told me what I was capable of”

Steve

“Nobody told me simple changes could make a massive difference”

Boris

“Nobody told me I'd find a community”

Bijal

“Nobody told me that I'd feel hopeful and less isolated”

Rabiah

“Nobody told me I could live such a full life”

Simon

“Nobody told me I'd have a toolkit for the tough days”

Steve

“Nobody told me I'd find a community”

Rabiah

“Nobody told me I could live such a full life”
The research

The fear is real. So is the information gap.

Our new research reveals the fears surrounding an MS diagnosis - and the vital information too many people living with MS say they weren't given when they needed it most.

Public opinion

Weighted omnibus survey of 2,217 UK adults conducted in September 2026.
62%

would fear losing independence following an MS diagnosis.

57%

are unaware that people with MS can take steps to support their health and wellbeing alongside standard medical treatment.

People living with MS

637 people diagnosed with MS by a medical professional, from Overcoming MS database.
71%

said that at the time of diagnosis, they didn’t know they could take steps to support their wellbeing alongside medical treatment.

64%

wished they’d been told sooner that physical activity, diet and other lifestyle choices could support health and wellbeing.

Your impact

Help the next person hear a different story, sooner.

You can change what the next person hears. It's thanks to the generosity of people like you that we can keep trusted information, practical support and an understanding community free for anyone diagnosed with MS.

“Your diagnosis may change your life, but it doesn't get to take your life away.”
“There is a lot of help there for me, when I am ready for it.”
“MS takes you apart, but you can build back better.”

Where your money goes

  • We do not receive any government funding.
  • Our information, resources, webinars, podcasts and community are free for anyone, anywhere.
  • Just £8 a month helps keep trusted MS information free for people searching for answers after diagnosis.

Every MS story is different

Help the next person hear a different story
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